Tag Archives: cancer

Reprieve!

Articles, Crisis, Death, Faith, Humiliation, Intelligence, Prayer, , ,

Sean O’Conaill  © Reality 2003

My two-month course of chemotherapy intended to stop the spread of cancer in the lymph system ended in mid August 2003. Another CT Scan followed in early September. It found that the cancerous nodes in the lymph had indeed been reduced, and that an operation to remove a cancerous bladder could go ahead.

This was the first indication that I could indeed be cured of cancer, that I was no longer in the ‘departure lounge’, and that I could hope for a resumption of normal life. Naturally I was relieved – but the experience of the nearness of death had changed me. I found that I wanted above all to remember that experience in all of its detail, not to escape from it.

The reason was that as a writer I had discovered the validity of what my church had always taught: the reality of a mysterious presence just beyond the range of our normal perception, available to us in time of greatest peril, especially when we come to evaluate our own lives. Trusting to that reality I had given myself to it completely, and then experienced also its power to heal our bodily ills as well as our closest relationships. I wanted above all to maintain contact with that reality.

The operation that followed involved major surgery. In a four-hour procedure, the cancerous bladder was removed. Then a 40 cm section of the smaller intestine was excised and formed into a new reservoir, connected to the kidneys and urethra. This has become the standard procedure to deal with bladder failure in the US and continental Europe, but it is comparatively new in Ireland.

I awoke to find myself seriously weakened and surrounded by infusion drips, with several tubes draining the new reservoir to allow it to seal itself before becoming fully employed. I felt as though I had suddenly become many times heavier, as it took an immense effort to accomplish even the slightest movement of an arm or a leg.

This was my time of greatest dependence, as I could not move, wash or even drink without help. When the human bowel is handled by a surgeon, it shuts down completely, refusing even to receive the contents of the stomach. In my case this meant that the saline infusion gathered in my stomach, creating an intense pressure. There was only one way of relieving this – by passing a tube through my nose into my oesophagus, and from there into my stomach. My very worst hours now followed, as I had to try to sleep with this tube in place, attached to my nose and impeding even my ability to swallow.

It would be great to be able to report that even in this crisis my faith and serenity were unaffected – but the truth was otherwise. I suffered, and there was no way round this. I could, and did, pray – but I was overwhelmed by the bodily pain and discomfort that enveloped me, and I experienced, at times, a profound despair.

I am now convinced that anaesthesia does not allow the human body to escape the effects of the deep trauma involved in the excision of a major organ. I felt as a child feels in the aftermath of a heavy blow: traumatised and expecting further similar blows – and unable to dwell on anything else.

Pain of this kind has a deep spiritual impact – persuading us that somehow we have merited the blow that has fallen, and leading to a profound loss of confidence in ourselves. Even now I am battling against this tendency.

In the middle of all this I was told that an exhaustive biopsy undertaken during the operation had confirmed that the lymph system was now entirely clear of cancer. I was indeed now ‘cured’, and had everything to look forward to. Only gradually did this sink in, as my strength came back, and with it my independence.

Almost four weeks after the operation I am home now, recuperating. My new bladder is fully operational, only slightly less efficient than my old one at its best. I don’t receive the same signals, of course – and need to remain aware of time passing, and of the need to relieve the new reservoir before it relieves itself!

One thing above all I have learned from all of this – how dependent we are upon the normal functioning of our own bodies – something we take entirely for granted – as well as the fragility of that body. An amazingly complex organic machine, it is the medium through which we experience and learn to function within our physical environment. When it becomes dysfunctional – as it always does eventually – we are faced with total separation from that environment, and with the question of what happens next. There is no evading this question.

I am above all profoundly grateful that my church has given me a framework within which I can face that reality, connecting my bodily environment with one that transcends it – one that will receive my essence with love when the moment of final separation comes. In that truth I will try to live out the rest of my earthly life, knowing that in the end God will find it sufficient that I commend my spirit to him, in love and trust.

In the meantime I must never forget what happened when, believing myself close to death, I trusted to what I had been taught – to the real presence of the Lord, especially in the valley of the shadow of death. If I can pass on that assurance to just one other person in the same awful circumstances I will perhaps feel that I have earned my reprieve.

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‘Ubi caritas …’

Articles, Crisis, Death, Faith, Spirituality, , ,

Sean O’Conaill © Reality 2003

In 1975, at the age of five, my only daughter, Cliona, told me to stop smoking:  she had just heard on TV that every cigarette shortened my life by a few minutes.

I stopped straight away, touched by the directness of the child’s heart and mind. Certainly that decision gave me good physical health for most of the ensuing period.

Cliona was named after an Irish goddess of the waves. Drawn to the Gospel story early on, she found herself as an adolescent repelled from a church that seemed to her sin-obsessed and authoritarian. Leaving for London in her early twenties she fitted perfectly into the New Age mould of that time – environmentally aware and drawn to oriental mysticism. The Catholic worldview of her childhood simply slipped away and she became a free spirit, travelling widely and becoming a writer.

Now in June 2003 when Cliona heard of my cancer she had the same child’s directness: she travelled to Coleraine with her partner, Ajay, a disciple of the mystic Osho. She also proposed that she and Ajay give me a Buddhist therapy called Tibetan pulsing – directed at the seat of the cancer in my bladder.

I had initial misgivings – to do with the fact that I had handed my condition over to the Great Physician, the Lord Jesus Christ. But then I remembered again the Taizé hymn I had heard in hospital: “Ubi caritas et amor, Deus ibi est.” (Wherever there is caring and love, God is also.) Had I not accepted the ministry of everyone in the hospital, irrespective of their faith, so why not that of my own daughter?

So I received three sessions of Tibetan pulsing – involving relaxation to rhythmic music, gentle massage, and meditation upon the role of the body part being affected. I learnt that the bladder was a delicate reservoir for the waters that I needed to preserve life – not a mere receptacle for waste. This eastern spiritual perception of the human body is so different from the western one, in which we have too readily learned to think of the body as a machine, with the doctor in the role of mechanic. It blended easily with my Christian perception of the body as sacrament of love.

At the beginning Ajay invited me to call into the therapy whatever spiritual presence I wished – so, of course, I called upon Jesus to heal whatever was awry. Ajay said that he detected that this was a particularly powerful prayer.

At the end of the last session Ajay asked if anything unusual had happened. I said, truthfully, yes – as I had seen an image of the cross, and superimposed upon it, an image of a fern leaf uncoiling as it does in spring. I had taken this to mean that the cross was the tree of life, and that my healing process had begun.

Now that my chemotherapy regime has just ended, with another CT scan scheduled for next week, I feel certain that there has been a great healing over those three months.

But, far more precious to me has been the healing of my relationship with my daughter. I believe I had resented her throwing away apparently everything she had received from her home and school, in which both of her parents had taught. Now I found her very sharp and intuitive about the pressures in my own life that had led to my illness. Especially the habit of being glued to the electronic media to collect data on the deteriorating world around me. She was also an invaluable guide to the organic diet I now moved on to, with great benefit.

She was also a mature and wise person, capable of communicating the necessity of spirituality to her own generation.

Best of all, I can see so much of myself in her – intellectual independence, a desire to communicate insights, a preference for wisdom before knowledge.

From this latest experience I have learned also not to be afraid to let my God mix freely with those of other faiths, confident of his ability to make his presence known in imagery that will communicate across all barriers.

Now Ajay will never again associate the cross merely with suffering, and will be open to contact with other Christian influences in his own country. The gentle pacifism of Buddhism, and the robust pacifism of Jesus, cannot be antithetical to one another. The truth is that Christian violence – too often sanctioned by Popes – has always been a betrayal of the Gospels, and it is time to recall the Church to the full pacific intent of the Gospels. The Dalai Lama and Ghandi call us in the same direction – and it is time we followed.

So, using the formula Ubi Caritas, no Catholic need be afraid of being unable to discern how to behave in the context of the many different faiths we encounter today. And we should not be afraid to let our children experience these faiths and cultures, and to ask their own questions. The truth need fear nothing from the truth. All of us are pilgrims whose paths cross for a purpose – to enrich everyone with the gifts of wisdom that are then exchanged.

Already the departure lounge had given me insight into the wondrous transaction that takes place between carers and patients. Now it had healed a relationship of great importance to me. In both cases, I had been learning something new – something I could write about – giving myself an added impetus to survive.

Next Monday I receive another CT scan, and a fortnight later the consultant will report the findings to me. Already I am confident that the cancer has receded generally, as I have practically no bladder discomfort, and the bladder has recovered its full capacity. Will I still need an operation to remove the bladder then?

I must wait and see – praying as I do so – for prayer has already proven to me its power to heal.

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“You have possibly incurable cancer.”

Articles, Crisis, Death, Humiliation, Prayer,

Sean O’Conaill  © Reality, 2003

“You have an aggressive cancer of the bladder – best cured by removal of the bladder. But the cancer appears to have spread to the lymph system, making this probably inadvisable. You first need chemotherapy, which has a fifty percent chance of enabling the operation.”

This was the essence of the news I heard from a consultant in one of Belfast’s major hospitals in mid June of 2003. Knowing that bladder cancer can kill if unchecked, I realised my near future was all I had left for certain.

Now, in early August 2003 I am two-thirds of the way through the chemotherapy course. Until this point, with my earth-survival horizon still uncertain and my family still fretting, I haven’t been sure that I could ever find the strength and the inclination to write about this – or anything else for that matter.

I have written before, from a safer distance, about the prospect of dying. For about nine years now I have been a committed Christian and Catholic, familiar with St Paul’s assurance that if we go into the tomb with Christ we rise again.

But there are many degrees of distance from the tomb, and for most of those nine years my distance from it has been very comfortable. I had, especially, until February 2003, good physical health – and therefore no experience of the shattering impact of physical collapse and dependency.

It’s all very well to write and speak heroically about death from that distance, but now I found that when an essential natural function collapses, begins to cause intense pain, and threatens basic survival, all of this romantic long-distance heroism about death collapses also.

I simply wasn’t in any way prepared for the bitter prospect of imminent departure. Aged sixty, I am the eldest of three brothers, with both parents still living, aged ninety-one. They lost my older brother to cancer in 1962, so shouldn’t I be allowed to survive them – to look after them? Wouldn’t any reasonable God agree?

And what about that better book I had planned, and that course of study, and those articles on this and that – and that first trip to the US I had looked forward to, taking advantage of a friend’s invitation?

Most of all though, I was assailed by an intense sense of loss – of losing everything I loved. My wife, my children, my parents, my home, the daily routine, the Ireland I love. I might soon, now, lose everything – to go into total uncertainty, dispossession and powerlessness.

I had previously in my writings drawn a distinction between death and humiliation – but now all separation between the two was lost. Death, I discovered, is in itself the final humiliation – the extinction of everything we humans are surrounded by in life, everything that gives us a sense of our own identity and significance.

I felt also an intense sense of isolation – of having been shut into a cell on my own, which no-one else could really enter – because it was an ante-room to death itself, a departure lounge from which there might well be no return, from which every instinct tells us to fly.

My worst night ever was that night in the hospital – as I faced a painful biopsy and no certainty of living far beyond the end of 2003. My wife was 60 miles away in Coleraine – as I had blithely travelled to Belfast on my own. Doctors and nurses were kind and encouraging, but they could not be with me in my isolation either. When the lights in the ward dimmed about ten and my neighbours turned to sleep I felt a degree of abandonment and loneliness that totally overwhelmed me emotionally – in a way I had never before experienced.

Desperately I sought some solace. As fate, or providence, would have it, I had brought a portable CD player with me – and my wife Patricia had packed a two-disc compilation of Taizé music. Not expecting it to be much help I had no other recourse.

“Lord, hear my prayer!” was soon echoing in my head – and my prayer was for a sense of His presence with me, there in that strange place, with people I did not know. Soon enough came something even more appropriate:

“Within our darkest night you kindle the fire that never dies away!”

Somehow the faith of choir singing this became at that moment my faith too, and I began to echo the music and the words.

Suddenly I felt a sense of warmth, and a certainty that I was among friends – even, in some sense, at home. I also felt a sense of time slowing down – and an awareness of slight movements around me that indicated living souls – dependent like myself upon the nursing staff nearby.

Dependent! That was part of my problem – the fear of dependence, of being incapacitated and increasingly useless. But, watching those nurses, I had realised already that their role and sense of duty and fulfilment rested wholly upon the dependence of others. For them it was the expected duty – not something burdensome and tiresome.

There, then, I began to come out of the shell of isolation into which the shocking news had pushed me, and to take a new interest in everything going on around me. By the time the discs had finished, time itself seemed to have slowed down. I even fell asleep for an hour or so.

A few days later I was reminded even more strongly of this sacred relationship between patient and carer, when my chemotherapy regime began. Tethered to an electric pump infusing various obscurely named liquids over a forty-hour period, I was confined to the oncology ward. The pump was clipped to a wheeled stand, allowing me, in theory, to push it ahead of me.

At 2 a.m. I received an urgent bladder signal in the darkened ward. For the sake of my morale I needed to make it to the bathroom eighty yards away. But when I had swung my feet to the floor I found the pump wouldn’t move more than a few inches.

“Are you all right there, darlin’?” came a Belfast accent. A nurse was at my shoulder.

“It’ll work off the battery,” she continued – unplugging the pump from the wall. She looped the cable round the pump, and I set off successfully, dignity maintained.

She had answered my question, the question everyone seems to be asking these times: – “Where is this God of yours when you really need Him?”

The answer was in another one of those Taizé hymns:

“Ubi Caritas et Amor, Deus Ibi Est! – Where there is caring and love, God is also!”

And it was there in the ward – among patients I could observe, many of them more ill than I was. I could observe them second-to-second, and I suddenly realised that my perception of time itself had changed.

Our attitude towards time seems to be strongly influenced by our perception of how much of it we have left. For children it seldom passes quickly enough, because it stretches away limitlessly. Although many of us now plan our lives a few years ahead, we somehow assume that the final frontier to this life is beyond every horizon for which we plan.

I could no longer do this. In fact I couldn’t plan anything now but my immediate response to the possibility of death within a year. “Depend upon it, Sir,” said the great Dr Johnson, “when a man knows he is to be hanged in a fortnight, it concentrates his mind wonderfully.”

I had a lot more than a fortnight, but my mind was indeed concentrating hard. By now I was aware of different schools of thought on the subject of cancer itself, its causes and treatments and how to fight it. My daughter had presented me with three different books on the subject and many of her own ideas coincided with those of a friend who is also fighting cancer from an alternative medical standpoint involving a completely organic diet. Hadn’t he told me he had sailed through chemo as a consequence?

First, however, I made what has turned out to be my most crucial decision: to place myself completely under the protection of the one I now call the Great Physician – the healing Lord of the Gospels. The Taize music had given me a sense of the Lord as always present – and especially in the darkest valley of Psalm 23. Above all I did not want to lose my awareness of that presence, whatever happened. I determined that from now on I would simply check out if I felt myself losing this awareness.

By ‘check out’ I mean simply disengage from the moment, close my eyes, and place myself again in the presence of the Lord. By now I had a prayer that allowed me to do this – one familiar to every Catholic:

“Oh my Jesus, forgive us our sins. Save us from the fires of hell. Bring all souls to heaven, especially those in need of thy mercy.”

It’s the first three words, not the mention of hell, that are crucial for me. They immediately state and invite a relationship. The rest of the prayer states a lack of presumption that anyone else is less loved or precious than I am. We don’t know what Hell is – unless it is endless futility and loneliness – but we surely wish to get wherever heaven is. And if we are truly into the spirit of the Gospels we know also that Jesus wishes to save every last one of us.

Something else had helped me immeasurably through that crisis – the messages of support that came from all who knew me – old teaching colleagues, Cursillo friends, Internet contacts abroad. I might now be in the departure lounge, but I was not forgotten – and the most powerful force for healing was active in my regard: prayer.

By day twelve of my hospital stay I was buoyantly looking forward to going home – and I had with me a journal detailing the state of my mind, soul and body from the start of the crisis. I continued to keep it at home – for I had much more to learn from that seat in the departure lounge called cancer. Editor permitting I will cover that in a second article under this heading.

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