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"You have an aggressive cancer of the bladder - best cured by
removal of the bladder. But the cancer appears to have spread to the
lymph system, making this probably inadvisable. You first need
chemotherapy, which has a fifty percent chance of enabling the
operation."
This was the essence of the news I heard from a consultant in one of
Belfast's major hospitals in mid June of 2003. Knowing that bladder
cancer can kill if unchecked, I realised my near future was all I
had left for certain.
Now, in early August 2003 I am two-thirds of the way through the
chemotherapy course. Until this point, with my earth-survival
horizon still uncertain and my family still fretting, I haven't been
sure that I could ever find the strength and the inclination to
write about this - or anything else for that matter.
I have written before, from a safer distance, about the prospect of
dying. For about nine years now I have been a committed Christian
and Catholic, familiar with St Paul's assurance that if we go into
the tomb with Christ we rise again.
But there are many degrees of distance from the tomb, and for most
of those nine years my distance from it has been very comfortable. I
had, especially, until February 2003, good physical health - and
therefore no experience of the shattering impact of physical
collapse and dependency.
It's all very well to write and speak heroically about death from
that distance, but now I found that when an essential natural
function collapses, begins to cause intense pain, and threatens
basic survival, all of this romantic long-distance heroism about
death collapses also.
I simply wasn't in any way prepared for the bitter prospect of
imminent departure. Aged sixty, I am the eldest of three brothers,
with both parents still living, aged ninety-one. They lost my older
brother to cancer in 1962, so shouldn't I be allowed to survive them
- to look after them? Wouldn't any reasonable God agree?
And what about that better book I had planned, and that course of
study, and those articles on this and that - and that first trip to
the US I had looked forward to, taking advantage of a friend's
invitation?
Most of all though, I was assailed by an intense sense of loss - of
losing everything I loved. My wife, my children, my parents, my
home, the daily routine, the Ireland I love. I might soon, now, lose
everything - to go into total uncertainty, dispossession and
powerlessness.
I had previously in my writings drawn a distinction between death
and humiliation - but now all separation between the two was lost.
Death, I discovered, is in itself the final humiliation - the
extinction of everything we humans are surrounded by in life,
everything that gives us a sense of our own identity and
significance.
I felt also an intense sense of isolation - of having been shut into
a cell on my own, which no-one else could really enter - because it
was an ante-room to death itself, a departure lounge from which
there might well be no return, from which every instinct tells us to
fly.
My worst night ever was that night in the hospital - as I faced a
painful biopsy and no certainty of living far beyond the end of
2003. My wife was 60 miles away in Coleraine - as I had blithely
travelled to Belfast on my own. Doctors and nurses were kind and
encouraging, but they could not be with me in my isolation either.
When the lights in the ward dimmed about ten and my neighbours
turned to sleep I felt a degree of abandonment and loneliness that
totally overwhelmed me emotionally - in a way I had never before
experienced.
Desperately I sought some solace. As fate, or providence, would have
it, I had brought a portable CD player with me - and my wife
Patricia had packed a two-disc compilation of Taizé music. Not
expecting it to be much help I had no other recourse.
"Lord, hear my prayer!" was soon echoing in my head - and my prayer
was for a sense of His presence with me, there in that strange
place, with people I did not know. Soon enough came something even
more appropriate:
"Within our darkest night you kindle the fire that never dies away!"
Somehow the faith of choir singing this became at that moment my
faith too, and I began to echo the music and the words.
Suddenly I felt a sense of warmth, and a certainty that I was among
friends - even, in some sense, at home. I also felt a sense of time
slowing down - and an awareness of slight movements around me that
indicated living souls - dependent like myself upon the nursing
staff nearby.
Dependent! That was part of my problem - the fear of dependence, of
being incapacitated and increasingly useless. But, watching those
nurses, I had realised already that their role and sense of duty and
fulfilment rested wholly upon the dependence of others. For them it
was the expected duty - not something burdensome and tiresome.
There, then, I began to come out of the shell of isolation into
which the shocking news had pushed me, and to take a new interest in
everything going on around me. By the time the discs had finished,
time itself seemed to have slowed down. I even fell asleep for an
hour or so.
A few days later I was reminded even more strongly of this sacred
relationship between patient and carer, when my chemotherapy regime
began. Tethered to an electric pump infusing various obscurely named
liquids over a forty-hour period, I was confined to the oncology
ward. The pump was clipped to a wheeled stand, allowing me, in
theory, to push it ahead of me.
At 2 a.m. I received an urgent bladder signal in the darkened ward.
For the sake of my morale I needed to make it to the bathroom eighty
yards away. But when I had swung my feet to the floor I found the
pump wouldn't move more than a few inches.
"Are you all right there, darlin'?" came a Belfast accent. A nurse
was at my shoulder.
"It'll work off the battery," she continued - unplugging the pump
from the wall. She looped the cable round the pump, and I set off
successfully, dignity maintained.
She had answered my question, the question everyone seems to be
asking these times: - "Where is this God of yours when you really
need Him?"
The answer was in another one of those Taizé hymns:
"Ubi Caritas et Amor, Deus Ibi Est! - Where there is caring and
love, God is also!"
And it was there in the ward - among patients I could observe, many
of them more ill than I was. I could observe them second-to-second,
and I suddenly realised that my perception of time itself had
changed.
Our attitude towards time seems to be strongly influenced by our
perception of how much of it we have left. For children it seldom
passes quickly enough, because it stretches away limitlessly.
Although many of us now plan our lives a few years ahead, we somehow
assume that the final frontier to this life is beyond every horizon
for which we plan.
I could no longer do this. In fact I couldn't plan anything now but
my immediate response to the possibility of death within a year.
"Depend upon it, Sir,"said the great Dr Johnson, "when a man knows
he is to be hanged in a fortnight, it concentrates his mind
wonderfully."
I had a lot more than a fortnight, but my mind was indeed
concentrating hard. By now I was aware of different schools of
thought on the subject of cancer itself, its causes and treatments
and how to fight it. My daughter had presented me with three
different books on the subject and many of her own ideas coincided
with those of a friend who is also fighting cancer from an
alternative medical standpoint involving a completely organic diet.
Hadn't he told me he had sailed through chemo as a consequence?
First, however, I made what has turned out to be my most crucial
decision: to place myself completely under the protection of the one
I now call the Great Physician - the healing Lord of the Gospels.
The Taize music had given me a sense of the Lord as always present -
and especially in the darkest valley of Psalm 23. Above all I did
not want to lose my awareness of that presence, whatever happened. I
determined that from now on I would simply check out if I felt
myself losing this awareness.
By 'check out' I mean simply disengage from the moment, close my
eyes, and place myself again in the presence of the Lord. By now I
had a prayer that allowed me to do this - one familiar to every
Catholic:
"Oh my Jesus, forgive us our sins. Save us from the fires of
hell. Bring all souls to heaven, especially those in need of thy
mercy."
It's the first three words, not the mention of hell, that are
crucial for me. They immediately state and invite a relationship.
The rest of the prayer states a lack of presumption that anyone else
is less loved or precious than I am. We don't know what Hell is -
unless it is endless futility and loneliness - but we surely wish to
get wherever heaven is. And if we are truly into the spirit of the
Gospels we know also that Jesus wishes to save every last one of us.
Something else had helped me immeasurably through that crisis - the
messages of support that came from all who knew me - old teaching
colleagues, Cursillo friends, Internet contacts abroad. I might now
be in the departure lounge, but I was not forgotten - and the most
powerful force for healing was active in my regard: prayer.
By day twelve of my hospital stay I was buoyantly looking forward to
going home - and I had with me a journal detailing the state of my
mind, soul and body from the start of the crisis. I continued to
keep it at home - for I had much more to learn from that seat in the
departure lounge called cancer. Editor permitting I will
cover that in a second article under this heading.
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